“My father has a rare genetic disease. It has no cure – no treatment.”

“My father has a rare genetic disease. It has no cure – no treatment. He has this because it was passed to him from his father and to his father from his grandfather. We can trace our family line back from the United States to a small town in northern England by looking at this gene. It is the kind of connection you don’t want. I watch as my father dies slowly and loses pieces of himself each day – the same as my I saw my grandfather and uncle die. I feel selfish for being sad for myself. To know he want be there to walk me down the aisle or to see his future grandchildren. Selfish for even wanting a family of my own – when I don’t yet know if I carry the gene. For all of the love I get from our relationship – I wish I could cut it off.”